GRO Resources

Final Reports From The GRO Project

• GRO Final Report (.pdf)
• GRO Rec­om­men­da­tions (.pdf)
• GRO Strate­gies for Improv­ing Access to Men­tal Health Ser­vices (.pdf)

Capac­ity Build­ing Sum­mit Resources

• White Paper: Build­ing Oregon’s Capac­ity to Serve Indi­vid­u­als with Com­plex Sup­port Needs (.doc)
• NASDDDS Tech­ni­cal Report: Sur­vey on State Strate­gies for Sup­port­ing Indi­vid­u­als with Co-existing Con­di­tions (.pdf)
• “Pick­ing Up the Pieces of Our Own Mis­takes:” Sup­port­ing Peo­ple with Co-Occurring Con­di­tions (.pdf)
• Never Give Up (.pdf)

Dis­abil­ity Related Resources

• Angel­man Syndrome:
  • Angel­man Syn­drome defined by Dis­abil­ity Online
  • Angel­man Syn­drome defined by National Insti­tute of Neu­ro­log­i­cal Dis­or­ders and Stroke
  • Angel­man Syn­drome defined by Wikipedia
  • Facts about Angel­man Syn­drome by the Angel­man Syn­drome Foundation
  • Sum­mary of Angel­man Syn­drome by Gene Reviews Online
• Asperger Syn­drome:
  • Asperger Syn­drome defined by National Insti­tute of Child Health and Human Development
• Autism:
  • Autism Research at National Insti­tute of Child Health and Human Development
• Cor­nelia de Lange Syn­drome (CdLS):
  • CdLS defined by Genet­ics Home Reference
  • CdLS defined by Wikipedia
  • Man­age­ment and Treat­ment Guide­lines for CdLS
• Down Syn­drome:
  • Down Syn­drome defined by the National Insti­tute of Child Health and Human Development
  • Down Syn­drome Fact Sheet by the National Down Syn­drome Society
  • Facts about Down Syn­drome by the National Insti­tute of Child Health and Human Development
• Frag­ile X Syndrome:
  • Frag­ile X Syn­drome defined by the Cen­ters for Dis­ease Con­trol and Prevention
  • Frag­ile X Syn­drome defined by the National Insti­tute of Child Health and Human Development
  • Frag­ile X Syn­drome by Emory Uni­ver­sity School of Medicine
• Prader-Willi Syn­drome:
  • Diag­nos­tic Cri­te­ria for Prader-Willi Syndrome
  • Prader-Willi Syn­drome defined by the Uni­ver­sity of Michi­gan Health System
  • Prader-Willi Syn­drome defined by Wikipedia
  • Prader-Willi Syn­drome Weight and BehaviorManagement
• Trau­matic Brain Injury (TBI):
  • Facts about TBI by the Brain Injury Asso­ci­a­tion of America
  • TBI infor­ma­tion page by the National Insti­tute of Neu­ro­log­i­cal Dis­or­ders and Stroke
• Velo Car­dio Facial Syn­drome (VCFS):
  • VCFS defined by the Cincin­nati Children’s Hos­pi­tal Med­ical Center
  • VCFS defined by Lucile Packard Children’s Hos­pi­tal at Stanford
• Williams Syn­drome:
  • Williams Syn­drome defined byMed­line Plus Med­ical Encyclopedia
  • Williams Syn­drome infor­ma­tion page by the National Insti­tute of Neu­ro­log­i­cal Dis­or­ders and Stroke
• NADD – An asso­ci­a­tion for per­sons with devel­op­men­tal dis­abil­i­ties and men­tal health needs

Child­hood Fact Sheets by the Cen­ters for Dis­ease Con­trol and Prevention

• ADHD Fact Sheet
• Autism Spec­trum Dis­or­ders Fact Sheet
• Cere­bral Palsy Fact Sheet
• Intel­lec­tual Dis­abil­ity (also know as Men­tal Retar­da­tion) Fact Sheet

Books

• “Suc­cess Sto­ries from the Front­line — Intel­lec­tual Dis­abil­i­ties and Men­tal Health” from the National Asso­ci­a­tion for the Dually Diagnosed

Fact Sheets

These doc­u­ments are fact sheets that describe statewide ini­tia­tives involved in devel­op­ing com­pre­hen­sive ser­vices for indi­vid­u­als with com­plex sup­port needs in Oregon:

• ReBAR
• Grow­ing Resources in Oregon
• Nurs­ing Home Diversion
• State Oper­ated Com­mu­nity Pro­gram Step Down
• Children’s Inten­sive In-Home Services

Assis­tive Tech­nol­ogy Resources

• Tom Keat­ing, Eugene Research Insti­tute, was very help­ful in intro­duc­ing the pos­si­bil­i­ties of assis­tive tech­nol­ogy.  (www.eugeneresearch.org 541.342.1553)

• Rest Assured, an orga­ni­za­tion asso­ci­ated with Per­due Uni­ver­sity & the Wabash Cen­ter in Lafayette Indi­ana, offers tele­care­giver ser­vices and kindly gave me an on-site tour of their tele-caregiver cen­ter (www.RestAssured.com 888.423.5531 ext 348)

• PLUK: Parents, Lets Unite for Kids (Mon­tana state par­ent & infor­ma­tion Cen­ter) has two pub­li­ca­tions I found inter­est­ing in think­ing about AT—Assistive Tech­nol­ogy Ideas for Read­ing, Writ­ing, Math, Study­ing & Orga­ni­za­tion and AT for Chil­dren with Learn­ing dis­abil­i­ties (www.pluk.org click on Publications)

• Elite Care Tech­nolo­gies www.elitecaretech.com “relationship-based elder care” with sites in Mil­waukie & Tigard

• Phillips Life­line www.lifelinesystems.com

• Res­cue Alert www.rescuealert.com

• AT&T Remote Mon­i­tor­ing   https://www.attrm.com/attrm07_hm_smbiz.htm

• Atten­tive­Care www.caregivertech.com

• Qui­et­Care www.quietcare.com

• iCon­trol www.icontrol.com

• The Alliance for Tech­nol­ogy Access www.ataaccess.org/default.html

• Access Tech­nolo­gies, Inc  www.accesstechnologiesinc.org

• Visi­plex Wire­less Tech­nolo­gies   www.visiplex.com

• Google search: assis­tive technology

• Check out mail order cat­a­logs like Har­riet Carter, espe­cially ones that cater to seniors

• Cruise stores like Radio Shack, or the home health & elec­tron­ics depart­ments in Big Box stores

• Talk to home secu­rity busi­nesses, an occu­pa­tional ther­a­pist or tour a retire­ment center

• Other dis­abil­ity advo­cacy orga­ni­za­tions, like Inde­pen­dent Liv­ing Cen­ters and the Com­mis­sion for the Blind often have col­lec­tions of mas­sive cat­a­logs of assis­tive tech­nol­ogy, both incred­i­bly cheap & insanely expensive.